Sunday, November 9, 2008
Thursday, August 21, 2008
Heavy Thoughts
A few weeks ago it was my Mom's birthday. She was 52 when she died early this year. That was actually only a few days before my own birthday. I mention this because of the emotions that I felt leading up to her birthday this year and after are a huge part of what is rattling around in my head. As you know, a little over a year ago I received a heart transplant. I was and am grateful beyond words for the gift of continued life it gave me but it has also been a source of conflict in my mind. See, once I'd gotten the heart and had gotten past the immediacies of a new transplant I felt elated and horrible in bursts. I was/am alive and this other person is not. It caused me quite a bit of mental turmoil and one evening I sat down and wrote about it all. It was basically a stream of consciousness, raw emotion and it was immensely cathartic for me to write. Only a few people in the world have seen this document and although I have it somewhere I'm not sure I could bear to go back and re-read it now. It was a time when I should have been incredibly happy and I was, but I also felt alot of guilt. Probably the best friend in my life told me something that was echoed by my father. A general question on a transplant support website that I frequent called www.transplantbuddies.com also produced alot of responses that matched what they said. It was difficult then though to accept.
Here is what he said: "yes, that other family is hurting right now, and yes they are still coming to grips with the loss of their loved one. But underneath that there MUST be a wild hope, a hope that somehow there is someone elses family who is experiencing incredible joy. They must be somewhat happy that some good can come of their grief." I listened to what he and my Father had to say and tried to move on beyond those feelings. Recently, as my mother's birthday rolled around, I had a unique perspective to reflect again on the wisdom of their words.
You see, when my mother passed away she died of the after-effects of a large aneurysm bursting in her head. It rendered her effectively brain dead within minutes. She was rushed to the hospital and they were able to bring her back before they determined the extent of the damage she'd incurred. When my family and I got her bedside I had a frank discussion with the neurosurgeon and had to recall alot of medical knowledge from my time as an EMT. The end result was that the prognosis for her was grave. The doctor very tentatively brought up the idea of organ donation to my family and I and we discussed it. Everyone was weeping, everyone was upset but there was zero dissent. Everyone agreed that there was no way that my Mom would NOT want to donate if that were possible. How could she not after what I'd been through myself? So, my mother donated. Her corneas have helped two people to have sight again and her liver works and sustains life for a woman in the mid-west.
You know what? My friend and my Dad were right..... There IS a huge unbridled hope that simply cannot be put down, that maybe in the midst of all our pain someone else could experience a life changing event. As time went on and we learned that my mother had saved the life of another person and changed the lives of two others there was a tempering effect to our sadness. I realize now that my pain and conflict shortly after the transplant weren't necessary. DESPITE my sense of loss, I do want the person who is living with my mother's liver to be happy, I really DON'T want them to feel guilt or sadness in that regard. I DO grieve for mother and to some extent I always will especially around those times that were special to her. But with the grief is a happiness as well. Someone else is LIVING because of my mother. That thought brings a smile to my face every time. I'll close this post simply.
To my donors family: Thank you. Thank you for giving me a gift that allows me to Live, Love and be Loved.
To the recipient of my Mom's liver: I sincerely hope that you too are Living, Loving, and being Loved.
To everyone else: EVERY day is a day to Live, Love and Be Loved.
Tuesday, July 29, 2008
Where's the beef?
Now, I just miss my family. I miss my kids running over to hug me when i come home. I miss smelling whatever Mrs. BG happens to be brewing up for dinner and the smell of the house when people are actually living in it. A house, this one at least, literally has a different smell in it when I come home now. Now I can hear you out there in internet land saying "Brian, that smell is your moldering socks and stuff!" And i say to you, au contraire!!! I have safely sealed the dirty laundry pile in the hamper, which is in the closet with the door shut in the bedroom. I assure you, no smell is escaping that area. Speaking of which, i suppose that I'll have to do laundry again this weekend. The problem with that is that it means I'll have to take the clean clothes out of the dryer where they are perfectly happy and fold them. This is far more tedious than just turning the dryer on for 20 min each morning when i get up and pulling something out fresh for wear that day.
Moving on, a few of my friends have most graciously provided me with victuals during this enforced bachelorhood. I've been to eat at Mr. and Mrs. Engineers house twice since I've come home and enjoyed the meal immensely both times. Here is a sampling of my last dinner there.
Yep, that's some steaks, freshly boiled farmer's market corn and some zucchini and potatoes. A great dinner. For dessert we had some Ghirardelli's brownies. I brought the box and bade Mrs. Engineer's wife to bake them. I had a bum arm you see and that made it difficult for me to make them. I ended up leaving half there and taking half home, and my half did not make it through the following day.
Why you may ask was my arm hurt and how? I really wish I knew. I simply woke up last Wed. with an incredible pain in my right shoulder.
I'd completely lost the ability to move the arm more than an inch or two from my side. I literally could not raise my arm to be level with my shoulder without excruciating pain. I medicated and iced and arranged to see my primary doctor. The conversation at the primary doctor went something like this:
Me: I can't move my arm and it hurts like the dickens. I think i need to go see an orthopedist can you write me a referral?
Her: Hmmm. Are you sure you can't move it? Did you do anything to hurt it?
Me: yep, I'm sure and no I didn't do anything unless sleeping is bad for your health.
Her: (examining me) Does it hurt when i push here? (ow) How about here? (OWW). How about if i put more pressure here? (OWWWWWW) Hmmm. I'm really just an Internal Medicine doc and not so great with bones and joints. I think you should see an orthopedist.
Me: (Almost sobbing) Thank you.
I love my doc by the way, she's been great the few times I've had to go see her since i moved to the Pacific NW and she left the room for a little while to get me an Orthopedic consult. She went above and beyond and found a doctor that accepted Tricare and verified that they had an appointment they could see me at within a few days and assured me she would put the referral in. Fast Forward to today.
Off I go to see the orthopedist, my arm is quite a bit better but still definitely not up to par. Aches, can't really drive with it etc.... I show up at the doctor's office this morning and the receptionist asks me for the hard copy of my referral. I politely tell her that Tricare usually faxes that directly to the doc and could she please take a look for it? She looks around and says it's not there and we'll need to call Tricare because if i see the doctor without a referral it's going to cost me the arm I'm trying to get fixed. So I sat down and eavesdropped into the conversation she had with Tricare. The gist of which was that Tricare had denied the referral to her doctor. Why? Because he was "in Network" but not "preferred" whatever that means. Tricare had instead changed the referral to have me go to some other guy. They did NOT inform the referring doctor, the referred to doctor or the referee (myself). Now these folks have my email address, my phone number, my work number, my work email and I wouldn't be surprised if they had the ability to speak directly inside my head. No contact was initiated though and so there I stood. Luckily the doc that Tricare wanted me to see had a spot open at 1400. So what did all of this turn up? The doc thinks I've made a labral tear or lesion. See:http://en.wikipedia.org/wiki/Slap_lesion
I really hope that he's wrong but he was able to describe my symptoms very very well. So, an MRI of the shoulder is next for final diagnoses. I had really hoped it would be just a pinched nerve as it's much better today than it was on Wed-Fri, but the doc is not optimistic.
So that's all I've really got. Momo is currently in the bedroom curled up on Mrs. BG's side of the bed. Every now and then she lets out a "woof" to make sure some passing squirrel knows that death awaits it inside the house. It can actually be pretty annoying. But she's a good dog and comes over every now and then to check on me and see what I'm doing. One of the coolest things she does is every night when i come home she runs around the house with a stuffed animal in her mouth, one of my eldest daughter's discarded ones, and runs to each room whimpering. She then comes back to me and looks at me very expectantly as if she is asking, "OK, where's my girls?" I tell her again that they aren't here and she goes and flops down with this weary sigh. I imagine she is thinking, "so I'm stuck with you AGAIN?" Ever hear the story of how Mrs. BG and I met? No? Yes, but want to hear it again? Next post.
Tuesday, July 15, 2008
Disneyland and DisneySea
I'll be back next week. Looking forward to seeing everyone again.
Saturday, July 12, 2008
A fun day
The driving for the first time in Japan in a long time went very well and I only made Sachi squeal once or twice. Sachi is blind as a bat though even with her contacts now so there was an occasion or two where she was reading the kanji street signs and yelling "turn here" at me in Japanese when I was already half a car-length into the intersection.... Had lunch at a restaurant called Heartland and then to Reiko's house where the parking video was taken. Some pictures of the "Somen" we had for dinner. Somen is a combination of two words. Soba, which is cold, thick noodles in a cold broth and Ramen which most of you will recognize as being hot skinny noodles in soup. So, wait for it...........Somen is skinny noodles in cold broth.
Today we are going to go out to a Japanese Manga store for my sister who wants to pick up a few authentic comics from Japan. We're also planning on a quick trip to the local temple for sister to see that. My brother in law is coming over later and bringing his 3 week old son. My nephew. That's it for today. Tomorrow is Disneyland and we are all looking forward to that. I never got the chance to go when i was stationed here and it should be fun. I've always wondered what Mickey or Minnie or Goofy would look like with slanted eyes.... I guess tomorrow I'll find out.
Crap, I almost forgot. Here are a couple pictures of me talking with my friend Shuji on his wife's VIDEO CELLPHONE. Let me say that again. video cellphone. Live. I spoke with him for nearly fifteen minutes and while the picture was sometimes choppy, it was truly amazing. Check it out:
Friday, July 11, 2008
The day after Harajuku
This was taken from the doorway of one of the shops. This is the clothes worn by the girls trying to be "living angel" or "lolita" style. That's what the signs said anyway. It was so pink it was painful to the eyes. I wish I'd been able to get the proprietor to agree to let us take her picture she was something to see. And now for the bad news. The only picture we got of my sister with some really impressive looking Lolita girls is on the camera she borrowed from my dad. Who met her at the airport with it, the charger and no connection cord for hooking it up to the computer. The camera is a bit old and so the memory card on the dang thing is a huge compactflash card. Compact my ass. It's almost as big as my palm!!! So, I'm going to post some pictures downloaded from the internet. They are very similar to what we saw though.
and this one, i think we saw her sister.
All in All a very fun day. We'd intended to go to a shrine as well and let the sister see that but after 6 hours in Harajuku we were all just beat. On top of that S and I had to go and see the brand new baby of her best friend who was still in the hospital. The baby is fine, nearly 4 days old but in Japan even if you had an uncomplicated birth you stay in the hospital for about a week. The kids got back to house and Y ate and crawled into the bed while we weren't looking. One minute she was there, the next grandpa was pointing her out curled up in the bed refusing to get out and take a shower. Very cute. So today, I'll be driving in Japan for the first time in several years. We're heading over to see 2 of S's other very good friends who've not seen us in years. A is doing good and enjoying herself. Currently sitting next to me reading Cory Doctorow's Little Brother, which is a hell of a book and was recommended to me by a friend. The kids are sitting at the table eating breakfast and S is having fish eggs and rice. Ughh. Today is not likely to be a big day for blogging but if anything interesting comes up I'll post it.